Rather than re-writing all the details, I thought I’d just include a copy of the message I sent to a handful of friends about it on the day I saw Dr Arviso, my new ENT, to get my test results:
I would appreciate any prayers or good thoughts you want to send my way. I’m trying not to freak the fuck out just yet.
Some of you know I have been having vertigo off and on for the past 6 months and have lost partial hearing in one ear. I finally got my ass back in to see a doctor a different ENT couple of weeks ago (see, A? I kept my promise to you!!). They did a hearing test and confirmed I have lost some high-frequency hearing in my left ear. Since then I’ve had a VNG test and MRI of my brain. I saw the doctor today to get the results.
Long story short, they found a small tumor in the auditory canal between my ear and brain. They believe it is an acoustic neuroma, which is a generally slow-growing, benign tumor (that’s the good news). They also found a small cyst in my pituitary gland. They’ve referred me to a neuro-something-or-other and a neurosurgeon to review my scans and see what they recommend. It could be anything from just keeping a close eye and repeat scans over a period of time to radiation to surgery. I won’t know until I see these other docs so hopefully they can see me soon.
That’s really all I know at this point, and literally just found all this out today. I’m not too proud to admit I am scared shitless right now! I’ll let you know what I find out in the coming weeks.
…They claim that no matter what, the hearing loss I have is basically permanent and will not come back….it will continue to get worse.
Mom has already said whenever they can get me in to see these other docs that she will plan to come up so Nurse Mom can remain calm and ask questions that I wouldn’t think to ask. My brain pretty much shut down when they said “tumor” and all I could think was DO NOT START CRYING IN THIS OFFICE!!! Pretty much everything after that was a blur. Then I boohooed all the way home til I could scan the results and send to Mom before I called her because I knew she would want to see exactly what they said.
I do have to say, I was pretty disappointed that, other than these 2 issues, they said the rest of my brain scan was “grossly normal” and my cerebral-something was “unremarkable”. Don’t they know brilliance when they see it?!?!!! lol